Cystitis - interstitial

There are no standard or consistently effective treatments for interstitial cystitis. Results vary from individual to individual. As long as the cause is unknown, treatment is based on trial and error until relief is found.

Some of the treatments that have been tried include:

• Dilation of the bladder with fluid (hydrodistention)
• Oral medications:
  • Elmiron (coats the bladder like Pepto-Bismol)
  • Opiates (Nalmefene)
  • Psychiatric medications such as Elavil or Vistarul (may have a pain-relieving effect, also helpful for psychiatric conditions such as depression, which often accompany this disorder)
• Intravesical therapy (instillation into the bladder) of medications such as dimethyl sulfoxide, heparin, clorpactin, lidocaine, doxorubicin, or BCG vaccine
• Surgery, ranging from cystoscopic manipulation to cystectomy (removal of the bladder)

For additional information and support, see interstitial cystitis support groups.

Treatment results vary. Some people respond well to simple treatments. Others may require extensive treatments or surgery to relieve symptoms.

• Chronic (long-term) pain that may cause a change in lifestyle
• Emotional trauma
• High costs associated with frequent medical visits
• Chronic depression (and accompanying suicidal thoughts)
• Adverse effects of treatments (depending on the treatment)

Call your health care provider if you have symptoms suggestive of interstitial cystitis. Be sure to mention that you suspect this disorder. It is not well-recognized nor is it easily diagnosed.