| ENCYCLOPEDIA INDEX |
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Injury Disease Nutrition Poison Symptoms Surgery Test |
| A B C D E F G H I J K L M N O P Q R S T U V W X Y Z |
Aicardi syndrome |
| Overview Symptoms Treatment Prevention |
| Treatment: |
| Primarily involves medical management of seizures and any other health concerns, and early/continuing intervention programs and therapies for developmental delays. |
| Support Groups: |
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Aicardi Syndrome Newsletter Publications include a bimonthly newsletter brief, and two to three large digests annually which are distributed to member families worldwide. The newsletter has also published yearbooks, family directories, and two medical-model surveys of affected daughters. Contact: Denise Parsons The A.S.F. has contributed financially to research into the causes of Aicardi Syndrome, and provides funds for the purchase of medical/adaptive equipment for affected daughters, publication and distribution of the Newsletter, and biannual Aicardi Family International Conferences. Contact: Al and Cindy Meo |
| Expectations (prognosis): |
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Prognosis varies widely depending upon the affected childs overall health and severity of symptoms. Nearly all have severe learning difficulties, although a few have some language abilities and some can walk independently or with support. Many remain totally dependent for their care. The known age range of affected children is from birth to 30 years of age. |
| Complications: |
| Complications vary according to the degree and severity of symptoms. |
| Calling your health care provider: |
| Call your health care provider or seek emergency care for spasms in an infant or epileptic seizures. |
Corpus callosum of the brain |
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